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David McNally
Visit Prayer Page Home UPDATED July 13, 2008  4
yr old David McNally is two-years post bone marrow transplant.
He is still on a lot of medications to control the graft-vs-host
disease (GVHD) which is caused by the unrelated donor cells
attacking his skin. When comparing him to other patients with
GVHD, David is doing very well. He is very active and smart.
However, he is immunosuppressed and very susceptible to
infections. He is not growing much because of the steroids, but
there has been some growth in the past two years which satisfies
the doctors. The doctors say he has a chronic skin condition
and will be on medications for a long time. The medications
have also caused high blood pressure, so he is on one more
medication to control that. We ask for your prayers that God
heal him quickly so he can come off all medications. Please
pray for God to protect his organs.
Michael & Aimee McNally UPDATED November 26, 2007 Jim Tuck, pastor, Oakland/San Jose/Santa Rosa, CA: Three-year old David McNally is a one-year post bone marrow transplant. His underlying blood disorder is healed. He now has converted to his donor’s blood type, but when this happened, his skin graft-vs-host disease (GVHD) got worse. He is on a stronger dose of steroids and immuno-suppressants, leaving him susceptible to infections. Please pray for his skin problem to heal and for God to protect him from infections.
UPDATED October 31, 2007
See updates at:
www.davidmcnally.blogspot.com
Three-year-old David McNally is doing well after his bone marrow
transplant in Aug 2006 for Wiskott-Aldrich Syndrome (WAS). He goes
everywhere with his family, including church services, and was able to
attend the Feast this year. He is still immunosuppressed because of
chronic skin graft-vs-host disease (GVHD) from the bone marrow donor's
cells, leaving him susceptible to infections. Skin GVHD is easier to
treat than other types of GVHD, so we are thankful. He is on oral and
topical steroids, which is stunting his growth while controlling the
skin GVHD. The underlying syndrome, WAS, is completely healed. His
body has converted to the donor's blood type too. The doctors tell us
perhaps one more year before he will be off of medications. He is a
very active and intelligent little boy and you would never know he was
sick. Would you pleae continue to pray for his skin healing and
protection from the medication side effects.
Aimee and Michael McNally
UPDATED March 26, 2007 Jim Tuck, pastor, Oakland/San Jose/Stockton: Thank you for your continued prayers and concern for David McNally. He is making good progress. He is active, affectionate, spunky, and full of personality! He has a whole-foods diet including breast milk. Previously he was on five immunosuppressors. One was removed three weeks ago and he's had no sign of graft-vs-host disease (GVHD). That is great news. The next step is to get all of his IV infusions, which are done every other week, down to one day per month. If there remains no sign of GVHD then his central line will be removed. He has had small skin rash spots here and there but they've gone away—in times past the rash spread. We have hope that his body is working hard to accept the new donor's bone marrow cells. He is expected to be off of all medications by August. Please pray for David's new immune system to work hard and strong (not against him) as the medications are discontinued . UPDATED February 1, 2007 From Jim Tuck, pastor, Oakland/San Jose/Stockton, CA: Aimee McNally is requesting your urgent prayers for her small son, David, due to a setback he is going through as he battles the Wiskott-Aldrich syndrome. He had a bone morrow transplant some time ago, and doctors have been monitoring his progress. This week they found that David is losing a part of his engraftment. A test revealed that his lymphocytes were only 61% donor cells. This means there is a mixed chimerism where his and the donor’s lymphocytes are mixed. The other cell lines are still showing 100% engraftment. Please pray specifically that David be healed of this serious graft-vs-host problem, and that his lymphocytes become 100% donor cells. It is important also that David's blood type convert to the donor’s blood type. UPDATED January 10, 2007 From Jim Tuck, pastor, Oakland/San Jose/Stockton: David McNally has been home since November. His bone-marrow transplant was successful and he is 100% engrafted. He is doing great, however, he has acute graft-vs-host disease (GVHD) of the skin because the donor T-cells are attacking his skin. He is on four medications to suppress the T-cells, which leaves him extremely vulnerable to infection. The great news is that he has been infection free thanks to God and the diligence of his family. His steroids are being tapered. The one serious issue is that his hemoglobin is very low. The doctors will run tests this week figure out why. This is unfortunate news because the last time his steroids were tapered his hemoglobin took a dive and he broke out in the GVHD rash. The doctors attributed the low hemoglobin to the GVHD, meaning his body is working hard to fight it and his bone marrow (being brand new) cannot keep up with producing enough red blood cells. Unfortunately, it looks like this and associated medications for will be dealt with for the next 2-4 months. It sometimes takes one to two years for the donor T-cells to die off. The medications coat the T-cells making them ineffective and they die. That leaves David very vulnerable to infection without those killer T-cells to fight infections. There are bad side effects to the steroids (stunt of growth) and the other immunosuppressors. The longer he goes on immunosuppressors, the higher his risk of lymphoma and cancers, since his body cannot fight them off, but that's on the extreme side of things. David’s parents are currently asking for prayers regarding his hemoglobin and GVHD. UPDATED September 1, 2006 From Jim Tuck, pastor, Oakland/San Jose/Stockton, CA: Two-year-old David McNally was diagnosed with Wiskott-Aldrich syndrome which required a bone marrow transplant. He had his bone marrow transplant on August 1. God has blessed him in so many ways. He continues to eat and was never on IV nutrition and went 25 days without a fever which is unheard of. The doctors and nurses are happy and surprised at how well his body did with chemotherapy. His white blood count is rising, and he can leave isolation for short periods of time with a mask. The bad news is that he has acute Graft-vs-Host Disease (GVHD), which means the donor cells are attacking his skin tissues, leaving him with a rash covering 75% of his body. This is common and expected with unrelated bone marrow donors. Another blessing is that the rash does not itch and is not blistered; it does not bother him. He will be on steroids for a couple of months to control the "attack" while the new cells engraft. Please pray the cells will engraft 100% without any rejection or side effects. As soon as the rash is under control and he is taking all his meds orally, David and his mother, Aimee, can leave. Please pray that all continues to go well so that David and his mother can be free from isolation UPDATED March 10, 2006 David McNally, the one-and-a-half year old son of
Aimee and Michael, is very much in need of your prayers as he battles
Wiscott-Aldrich Syndrome. He was
recently in the hospital for bleeding on the brain. Thankfully, the bleeding
was stopped, and he was able to be sent home. He seems to be doing much
better for now. UPDATED February 10, 2006 From Jim Tuck, pastor, Oakland/San Jose/Stockton, CA: Some have been requesting an update concerning 1 1/2 year old David McNally, who has been fighting a battle against Wiskott-Aldrich syndrome. Prayers were sought for him regarding guidance on whether to go forward with a bone marrow transplant. Thankfully, there were some good matches found, but due to a number of factors, the doctors are recommending that David not receive the transplant at this time. Aimee and Michael McNally have decided to go with that advice. So this will be the last update unless David's condition changes. They wish to thank everyone for their kind concern and prayers. UPDATED October 9, 2005 Jim Tuck, pastor, Oakland/San Jose/Stockton/Santa
Rosa, CA: UPDATED August 18, 2005 Dear Brethren,
We are overwhelmed by your kindnesses and encouragement. We received over 40 cards from around the United States and Canada. We feel comforted knowing that you are praying and thinking of David and our family.
David is doing o.k. He has his bad days and good days. In most cases, Wiskott-Aldrich Syndrome is a progressive and fatal disorder. We are holding up hope that David’s symptoms will continue to stay mild. God is leading us to individuals who have experienced what we are facing, including one family that lives 5 minutes away, and one man with Wiskott who is 41 years old with five children. God is also opening doors to doctors and researchers around the US that specialize in this disorder. David will undergo more specific blood tests in the next 1-2 months. We pray the results will show a mild gene mutation or, even better, a spontaneous healing. God’s guidance and your love for us has been above measure.
Please remember to check our blog for updates: http://www.davidmcnally.blogspot.com
Many thanks! Aimee, Michael, Adira, Ariella, and David McNally 5068 Kingston Way
San Jose, CA 95130
August 8, 2005 Jim Tuck, pastor Oakland/San Jose/Stockton/Santa Rosa, CA
Your prayers are requested for 13-month old David McNally, son of
Michael and Aimee McNally of the San Jose, CA congregation. He has
been diagnosed with a rare genetic blood disorder, Wiskott-Aldrich
Syndrome. This causes low blood platelets and a compromised immune
system. The only known cure is a bone marrow transplant, most
successfully done with a relative donor. No matches were found in
David's family. Please pray for God's intervention for his healing
and guidance in the difficult decisions the family is facing.
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